It's Fall Y'all!

Soon after school started, Dan was finally able to request and receive time off! He took advantage by participating in a group ride at the Tail of the Dragon in the Appalachian mountains in North Carolina. 

Getting back into the routine of school, even virtual school, can be exhausting. Here's what Cade looks like a lot of the time.

I finished yet another puzzle. I have done mostly White Mountain puzzles, but found this one at Hobby Lobby and really enjoyed it. If you look really closely, the titles of the books are are joke titles like "Planet of the Grapes" and "Great Speculations". Fun!

And after Labor Day, Cade started having in-person marching band rehearsals. Unfortunately the very first rehearsal got rained out, but now they're getting ready to play for football games in October. Not sure how much they'll actually get to move around the field given they'd usually have rehearsals every day for a lot longer, and right now they're only allowed twice a week. 

Alex continues to grow his cooking repertoire and is a huge help to me. I told him to start keeping a log of all the things he knows how to cook! This is a picture of him with his biscuits and gravy breakfast casserole he made for dinner one night. He legit does these things all by himself! It was delish!

He even wanted to make his first cake from scratch for my birthday! I helped just a little by getting him some good cake pans and asking advice from my good friend Teletha. I wanted to have a spice cake with cream cheese frosting, and it turned out amazing! I'm sure if he wants to improve his decorating skills, other frostings would be easier to work with. But I'd call his first cake making adventure a huge success! Thanks Alex for working hard to make my birthday special!

And thank you to my friends and family for reaching out and making my birthday special too! It was definitely a time of reflection for me, turning 39 and feeling 79, lol!

The day after my birthday the boys (mostly Alex) wanted to go to six flags, so we dropped them off and tried out a Korean restaurant on that side of town for a birthday lunch. It was yummy, but we prefer the one we first found on the east side of town, Kim's Galbi!

Dan got some octopus to fry up at our table. No thanks!

Last Sunday we had our first in-person church meeting since the pandemic! It had been over 6 months. Isn't that crazy? We just had a brief sacrament meeting, and that was our only meeting for the month of September, but in October it looks like we'll be going every week. We've really enjoyed our time of church at home and having weekly zoom meetings with Grandma Kathy and Uncle Kevin, and they boys sure learned a lot of hymns! Here's a picture of us in our Sunday best, which mostly still fit the boys after their growth spurts. I think Cade needed a new shirt and shoes, lol.

And I just love this picture of Alex we took for his piano teacher. Such a great smile!

And lastly, mostly as a means of documentation, I've continued my search for what on earth is ailing me. My primary care doctor changed, again, and the first time I talked with him in late August he asked for more time to study all the things we've previously tested to see if there was anything else he wanted to look into. We talked the next week and it was at that point that he put in a few more tests, but felt that at this point we could consider my lingering symptoms to be Chronic Fatigue Syndrome. There's a standard set of questions doctors can ask to help decide if a patient has CFS, but there are no other tests or way to confirm it other than the patient's description of symptoms. A diagnosis by exclusion they call it, meaning they've ruled everything else out and that's what you're left with basically. 

It's not a shock to me, but it is not what I wanted to admit to. I've been in such a strong mindset of finding what's wrong so we can fix it and get back to how I was nearly 6 months ago. Instead, a diagnosis of CFS leaves very little hope for any sort of treatment or hope of progress. 

I am still following up a few last tests that my pulmonologist and primary care doctor want to look into. I'm not terribly hopeful, though, as every avenue I've gone down has yielded 'normal' results. For example, one of my main symptoms besides fatigue is the tightness in my chest and respiratory issues when exerting myself. I FINALLY got into the pulmonology clinic (after two months of trying) and they did a Pulmonary function test and an O2 desaturation test. And even though I left with my lungs burning and wanting to die, my oxygen levels never dropped below 98% and my lungs appear to be functioning normally on paper. Every test comes back like I'm fine, but I'm far from fine. That's that hardest part for me.

So what it comes down to now, is trying to limit my physical exertion to hope for low and slow healing, or to not further advance my fatigue at least. I thought by pushing myself to keep going that I was doing myself a favor, but that's the difference between someone with CFS and someone without it. Normally when you've been sick for awhile and you try and get out and get some exercise by taking a walk or running some errands you are glad you made yourself get moving because you feel better. When I did things all summer, I was mentally glad to be doing something different, but I was crashing and burning after doing these things. And slowly it was not just an outing like a hike or a river adventure that was too much, it was grocery shopping, and now even vacuuming or sweeping the floor. Very simple things are wiping me out for the day. I don't necessarily want to sleep, it's not that kind of tired. It's like pure, tangible physical and mental exhaustion where I just can't go on. So, I've divvied out my household chores to my kids and husband and I'm in mode of just trying to figure this new normal out. I'll finish these last few tests with my doctors and then turn to........ i don't know, maybe more holistic approaches.

I'm just so glad that it has started to cool down enough that I can go outside again, even it is just to my back porch on my hammock. :)  Happy Fall!